Desert Living, Encouragement, Special Needs, Stress and Anxiety

Distractions

In my mind, distractions are negative.  I find myself when life is hard, scrolling my phone, binging TV, eating, and even reading.

This past week distractions have been positive.  With the hard news that I received last Friday, I needed distractions, God knew I would need them and the timing of my SIL Bev coming was a gift.

We had an adventuresome week.  I was a tour guide and took her to some of my favorite places. We also explored several new places that we could mark down as FIRSTS for both of us. We shopped and eaten lots of ice cream.

Kaden and my two nephews Tucker and Jake also were here part of the week and adding three young men to a household, that’s a good distraction.  They left Wednesday, for a weeklong venture to numerous national parks in Arizona and Utah.   

Today is one week since I read the words “denied”. I haven’t been able to start our official appeal again but there has been God sightings in this journey and movement.

We will be moving Bryson into his new home next Thursday on private pay while we fight. It’s the transition that we have been waiting for these last 7 months… it is what I have needed and wanted but…. NOW I truly must face it and the idea of letting go… that’s for a whole new post. My anxiety is high.

Bryson attended a recreational day program yesterday for half a day.  He will be attending this part time and will eventually be getting a job also.  He was nervous, I was nervous.  It was ok… adjustments, transition, newness, all scary things.

I am waiting for several return calls from two advocates and lawyers who I spoke to before I did the initial appeal and they had said they would help if I needed them down the road.

The agency that I am working with has been fantastic and they have some information that will be helpful in our fight. 

I have learned that DDD (the entity that I am fighting) can be a bully, tough and unfair.  They want you to give in, they only see the paperwork and the diagnosis, not the person behind the paperwork.

I don’t understand; I’ve questioned God; I’ve also felt prayed for and carried by all my warriors…. THANK YOU!

God has brought songs on the radio to bring me comfort; friends have sent encouraging songs and verses. 

We will move forward with COURAGE and FAITH, leaning strong on the promises of God.

Desert Living, Encouragement, Special Needs, Stress and Anxiety, Type One Diabetes

Day 210

Yesterday was Day 210 of us being in the desert.

Yesterday was Day 30 to hear back from the State about Bryson’s appeal.

Yesterday at 3:50 MST (1 hour and 10 minutes before the state’s deadline) I received an email.

YOUR APPEAL HAS BEEN DENIED

The grief, anger, frustration and disbelief were overwhelming.

The weeping, the deep groaning of sorrow and anger spelled out of my soul as I talked to Brad on the phone. 

I called the head of the agency I am working with; she is a DR and experienced in the disabilities field was appalled. She said we have options.

I told her I was done, she said “Lisa but you can’t let them win” I told her I was tired.

Thankfully my dear friend Lynette showed up. We debriefed, we processed, we even laughed. 

Thankfully my SIL Bev and nephew Jake arrived from Manitoba last night. Tucker and Kaden will arrive tomorrow.

I slept ok, I woke up with a severe headache. I’m so fragile and overwhelmed.  But I feel His presence.

I will rest and Brad and I will go over our options, we will lawyer up, we will fight!

Shock is still lingering, but I will press on to run the race that God has marked out for me even if I am out of shape and exhausted.

Thanks friends and warriors.

Desert Living

Time is Ticking

It’s been 13 days since I submitted the appeal, the State of Arizona has 30 days from submission to respond.  Here is what I have been doing in the waiting….

*Brad was here for 10 of these days, it was so good!

*Friends, Dennis and Clara, came in one weekend and we did tourist things, had deep conversations and good belly laughs.

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